https://patients.erknet.org/wp-content/uploads/Ask-the-expert_Zeichenflache-1-e1647350493715.png 4728 5968 Stefanie Häberle https://patients.erknet.org/wp-content/uploads/erknet-logo_forpatients.png Stefanie Häberle2022-03-15 14:09:562022-03-15 14:22:32We are happy to announce our new “Ask the Expert” initiative. If you have one burning question regarding your/your child’s disease, for instance regarding the diagnosis, treatment, quality of life and long-term prognosis, we encourage you to formulate and submit your question to our ERKNet specialists.
https://patients.erknet.org/wp-content/uploads/20220211_Geschenkuebergabe_2mb-uwe-scaled.jpg 1707 2560 Stefanie Häberle https://patients.erknet.org/wp-content/uploads/erknet-logo_forpatients.png Stefanie Häberle2022-02-15 12:09:222022-02-15 20:35:34Franz Schaefer was honoured with the Black Pearl award for scientific contributions to rare kidney diseases
https://patients.erknet.org/wp-content/uploads/h-care-study-2020.jpg 1094 1776 umlaut https://patients.erknet.org/wp-content/uploads/erknet-logo_forpatients.png umlaut2020-10-16 15:21:432020-10-16 15:23:42Patient satisfaction Survey Results („H-Care“)
Dear ERKNet members, partners and friends, ERKNet in collaboration with the Eurodis three other ERNs conducted a pilot H-CARE Survey aimed at determining patient experience and satisfaction with their care within ERNs. The survey that included…