The European Rare Kidney Disease Reference Network

Welcome to ERKNet for Patients

and resources to assist you

Offering specific disease information

and their carers

Providing support for patients with rare kidney conditions

News

ERKNet- Ask the expert

We are happy to announce our new “Ask the Expert” initiative. If you have one burning question regarding your/your child’s disease, for instance regarding the diagnosis, treatment, quality of life and long-term prognosis, we encourage you to formulate and submit your question to our ERKNet specialists.

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Patient satisfaction Survey Results („H-Care“)

Dear ERKNet members, partners and friends, ERKNet in collaboration with the Eurodis three other ERNs conducted a pilot H-CARE Survey aimed at determining patient experience and satisfaction with their care within ERNs. The survey that included…
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What is a European Reference Network?

The Rock of Life