The European Rare Kidney Disease Reference Network

Welcome to ERKNet for Patients

and resources to assist you

Offering specific disease information

and their carers

Providing support for patients with rare kidney conditions


ERKNet- Ask the expert

Patient satisfaction Survey Results („H-Care“)

Dear ERKNet members, partners and friends, ERKNet in collaboration with the Eurodis three other ERNs conducted a pilot H-CARE Survey aimed at determining patient experience and satisfaction with their care within ERNs. The survey that included…

What is a European Reference Network?

The Rock of Life