🩺Nice #NDT #digest👏:
The #genetics of steroid-resistant nephrotic syndrome in adults
👉https://bit.ly/3guQRvi
#NephroticSyndrome #genes
9 recent guidelines were just reviewed by #ERKNet experts and formally adopted by the Network Board! Read more in our latest #Newsletter: http://tiny.cc/0q8msz
#ejprd International Summer School on #RareDisease Registries and #FAIRification of Data
- 28 Sept – 2 Oct, online
- Registration closes on July 19
- Course + Registration are free
- Max 30 participants
https://www.ejprarediseases.org/index.php/international-summer-school-on-rare-disease-registries-and-fairification-of-data-2/
#ERN support both - patients and physicians! Check latest @EU_Health testimonials from both sides about the benefits of #ERN and their activities:
Videos
Public Health -
ec.europa.eu
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umlaut2020-06-24 10:41:082020-06-24 11:16:40ERKNET Survey on Fanconi Bickel Syndrome
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umlaut2020-06-20 11:52:532020-06-24 11:58:25ERKNet Newsletter: Network achievements, evaluation of progress and post-meeting feedback
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umlaut2020-06-14 12:01:002020-06-24 12:06:08The 2020 ERKNet Virtual Annual Meeting was a success
