Patient Communities

RareConnect Communities

RareConnect.org is safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages.

Alagille Syndrome
Alstrom Syndrome
Amiloidosis
Atypical Hemolytic-uremic-syndrome
Behçet Syndrome
Cyoglobulinemia
Cystinosis
Familial Mediterranean Fever
Hereditary Rickets
Lowe Syndrome
Nephrotic Syndrome
Vasculitis
Von Hippel Lindau

Follow us on Twitter

PATIENT JOURNEY

PATIENT ORGANISATIONS

PATIENT COMMUNITIES

RESEARCH

EVENTS & MEETINGS

Patient Communities

RareConnect Communities

Facebook Communities

Instagram Communities

Twitter channels

Youtube channels