Patient Organisations

United Kingdom

1
2
3
4
United Kingdom
1

Polycystic Kidney Disease Charity, London

2

URDDAD Foundation – The ultra rare Diseases, Disorders and Disabilities Foundation, London

3

Bardet-Biedl Syndrome UK, Harwich

4

Alport UK, Gloucestershire

Patient Organisations in the United Kingdom

1 – Polycystic Kidney Disease Charity (PKD UK), London*

2 – URDDAD Foundation – The ultra rare Diseases, Disorders and Disabilities Foundation, London

3 – Bardet-Biedl Syndrome UK, Harwich

4 – Alport UK, Gloucestershire


*European Patient Advocacy Group (ePAG)