Patient Organisations
United Kingdom
1
2
3
4
1
Polycystic Kidney Disease Charity, London
2
URDDAD Foundation – The ultra rare Diseases, Disorders and Disabilities Foundation, London
3
Bardet-Biedl Syndrome UK, Harwich
4
Alport UK, Gloucestershire
Patient Organisations in the United Kingdom
1 – Polycystic Kidney Disease Charity (PKD UK), London*
2 – URDDAD Foundation – The ultra rare Diseases, Disorders and Disabilities Foundation, London
3 – Bardet-Biedl Syndrome UK, Harwich
4 – Alport UK, Gloucestershire
*European Patient Advocacy Group (ePAG)