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ERKNet for Patients – The European Rare Kidney Disease Reference Network
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ERKNet@EuRefNetwork·
10 Nov 1326232266918555649

This Thursday! ⬇️

This Thursday! ⬇️
IPNA Ped Nephrology@IPNA_PedNeph

Don´t miss the second part of the webinar on Nephrotic Syndrome, this Thursday at 4pm CET with Agnes Trautmann.

👉 Register here: https://bit.ly/32q9rzV

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ERKNet@EuRefNetwork·
15 Okt 1316758849018306561

📅Join 2nd Baltic #Fabry Expert Meeting | Organized online / Oct 30, 2020 ✅ Register here: http://tiny.cc/0q8msz

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aHUS Alliance Action@aHUSAllianceAct·
24 Sep 1309109075259531264

It’s aHUS Awareness Day, so what’s new regarding #aHUS aka #SHUa in the #EU? @EuRefNetwork, as the European Reference Network for Rare Kidney Diseases, has impact & reach beyond the EU re atypical HUS & TMA research. #nephrology https://www.ahusallianceaction.org/erknet-2020-update/
#renal #research

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IPNA Ped Nephrology@IPNA_PedNeph·
1 Sep 1300704560604999680

Webinars are back! In a week you can attend @EuRefNetwork - @ESPNSociety Webinar on Autosomal Dominant Polycystic Kidney Disease.

Follow the link for registrations and forget to mark the dates in your agenda for the upcoming IPNA Webinars.
👉https://bit.ly/2YSOrQw

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Image for the Tweet beginning: Webinars are back! In a
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CJASN@CJASN·
27 Aug 1299050948850069505

Preimplantation genetic testing helps prospective parents prevent passing on disease-causing mutations to their offspring. A clinical overview analyzes 25 years of preimplantation genetic testing for monogenic kidney disease in The Netherlands. http://bit.ly/CJN03550320

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Image for the Tweet beginning: Preimplantation genetic testing helps prospective
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Krankheitsverläufe aus Patientensicht

(z. Zt. nur auf Englisch verfügbar)

ALPORT Syndrome Patient Journey

DOWNLOAD PDF

Atypical Hemolytic Uremic Syndrome (aHUS) Patient Journey

DOWNLOAD PDF

Autosomal Dominant Polycystic Kidney Disease (ADPKD) Patient Journey

DOWNLOAD PDF (this interactive PDF is best downloaded and viewed with Adobe Acrobat Reader in ‘Single page’ mode) Source: https://pkdinternational.org/adpkd-route-map (the patient journey can also be found here in German, French and Dutch)

Autosomal Recessive Polycystic Kidney Disease (ARPKD) Patient Journey

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CAKUT Patient Journey

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Cystinosis Patient Journey

DOWNLOAD PDF

Familiar Hypomagnesemia with Hypercalciuria and Nephrocalcinosis (HFHNC) Patient Journey

DOWNLOAD PDF

Gitelman Syndrome Patient Journey

DOWNLOAD PDF

Rare Renal Diseases – Common Patient Journey

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Rare Renal Diseases – Common Patient Journey

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